May I change my mind about donating after I have registered as a tissue donor with the Bank?

Absolutely, anyone who registers has the right to withdraw at any time. In addition, if a patient signs up to donate his or her body after death, the legal next-of-kin is still required to provide signed permission for an autopsy examination.

Will an autopsy examination interfere with funeral arrangements or open casket viewing?

No, autopsy examinations are performed as rapidly as possible. The procedures used to recover tissues after death do not interfere with open casket viewing and traditional funeral services may be planned.

Who will know the results of the post-mortem examination?

No one, at the time the case is donated; it is assigned a unique identifying brain and tissue bank number. From that point onwards, this number only identifies the case. This includes all tissue samples and chart information. When tissue is distributed to investigators, only the BTB number identifies it.

Will it cost me anything to donate tissue?

No. The Brain Bank assumes all financial responsibilities for tissue collection, including the cost of the autopsy examination and related transportation fees.

What will happen to my tissues?

All tissues are stored in the brain and tissue bank facilities at the University of Miami. When a scientist requests tissues for research purposes, a committee of experts reviews the request to ensure that the proposed research is of high quality, that the research design is appropriate, and that the scientists performing the experiments are skilled investigators. Once these requirements are met, the tissue is then provided to the research laboratory.

A unique BTB number identifies all tissue and clinical information sent out from the bank, to ensure patient confidentiality.

How can I get more information about donating?

You can call our toll-free number at anytime. Lillian Rodriguez, the project coordinator, will be happy to answer any questions you may have. (800-59-BRAIN).